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Click to learn more at smashsmard.org
SmashSMARD is a non-profit 501(c)(3) created to help raise awareness and funding for gene therapy research to treat this disease. Pre-clinical research has already started at Nationwide Children's Hospital in Columbus, Ohio and a clinical trial may be planned as early as 2020 if we secure the funding! Please consider contributing to this organization that will hopefully one day save Brooks' life and the lives of many other children living with SMARD.
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You can buy a shirt to contribute to the cause here:
Take the #smashSMARDchallenge
Not currently available Online
Shoot us a message for how to purchase
Who: YOU!! We need YOUR help!
What: The #smashSMARDchallenge was designed to bring awareness and necessary funding to cure this rare disease that currently has no treatments.
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Why: We need your help to spread awareness and raise money for research. Gene therapy is a well documented treatment for this disease in animal models. The plan is to translate this promising data into a human clinical trial as soon as possible!
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How: Use your cell phone to record a video and be sure to include the following:
* Donate to smashSMARD!
* Tell everyone why this organization is important to you.
* Smash a pie in your face or have someone else do it. Be creative :)
* Nominate others to complete the challenge and to donate, even if it is only $5!
* Post to social media and tag the people you challenged!
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Below is a video of the smashSMARD founders explaining the purpose of the nonprofit as well as the #smashSMARDchallenge. A photo of Brooks is even featured at the end!
"Alone we can do so little; together we can do so much."
- Helen Keller